Learning Library

Find tools and resources to use or share with others.

Designed to help you along your PAH journey, Living PAH resources include tools that explain some of your treatment options, show you how to track changes in activity level and symptoms, and demonstrate how to best communicate with your healthcare team. These resources are available at no cost. You can download and print copies.

Doctor Discussion Guide

We’ve all been there. You go to your doctor with a lot of questions, and leave forgetting to ask at least one of them. Living PAH can help you make the most of your time with your doctor and get answers to your questions. Follow these steps to get your discussion guide:

  1. Select the topics you would like to discuss with your doctor from the list.
  2. Click GENERATE YOUR GUIDE to print your personalized list.



Perform a Self-assessment

A self-assessment can help you and your doctor determine how you’re doing and whether your treatment plan needs to be adjusted.

Every few weeks, complete this form and determine whether anything has changed with your condition, your side effects, or your everyday activities. Get started today. This information can help your healthcare team determine the status of your disease.

Understanding PAH Disease

It’s understandable that your PAH diagnosis may leave you feeling unsure about what’s been going on inside your body. Learn all you can about the causes, symptoms, and anatomical factors of this complex and rare disease.

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Understanding PAH Testing

Having PAH requires that different tests be performed periodically, depending on the severity of your condition and your individual treatment needs. Being familiar with these tests and how often they are necessary can help take some of the surprise out of your checkups.

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Understanding Your Role

If you or a loved one has been diagnosed with PAH, it’s normal to have questions. You might be wondering about what treatment options are available, how to navigate disease management, how to have effective communication with physicians, or how to give and receive the right support. By learning more about these aspects of care, you may be able to take on a greater role in your treatment plan or in the disease management of a loved one.

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