Tools to Help You be Proactive in Your Care

There are several things you can do to be your own advocate. Here are some tips, tools and resources that can help you get the most out of your doctor visits and treatment and help keep you one step ahead of PAH.

Start by assembling a good team who can answer all your questions and give you the support you need. These include:

• Your Loved Ones
• Caregivers
• Primary Care Physician
• Diagnosing Community Pulmonologist/Cardiologist
• PAH Specialist
• PAH Clinical Coordinator (Nurse Clinician)
• Nursing Staff
• Distributor Nurse/Pharmacist – Accredo, Caremark, Curascript