Care and Treatment

Although PAH was once a diagnosis that offered few options and little hope, now more is understood about the care and treatment of this disease. So it is important that you discuss your condition and treatment plan with your doctor frequently, and seek out a doctor who specializes in the treatment of PAH.

The number of treatments for PAH has increased from 1 Food and Drug Administration (FDA)–approved treatment in 1996 to 13 treatments approved in the US by the end of 2015, with many more in clinical development. In addition, there is now a national accreditation program to identify care centers with special expertise in treating PAH. Advancements in treatment and better diagnostic tools bring new hope for people dealing with PAH.

PAH is a progressive disease. It is important to attend each of your doctor appointments to monitor your condition.

Even with all the medical treatments available, you must still pay close attention to your condition. PAH is a progressive disease and can change over time. It’s important to talk to your doctor regularly to review your treatment goals. This will help your doctor determine if changes need to be made to your treatment plan.

Any increase in the severity of your symptoms or unwanted side effects may suggest to your doctor that a treatment adjustment is necessary. One way to keep track of your activities and symptoms is with the Living PAH self-assessment guide.

Learn more about how to work with your doctor to find the right treatment for you.